Wednesday, June 18, 2008

Click Here for Article on Lex (with Steve photo)

Did you guys see that link? Did I JUST FIGURED OUT HOW TO DO THAT?! That is a link to an article that ran in the Atlanta paper about Lex, and it includes a photo of Steve and Lex and a quote from MaryAnn. I appreciate your patience while I learn how to add links. It's a little tricky.

Sorry to be so late in posting tonight, I was at a funeral for a beloved cousin today. Despite the immense sadness, there was a lot of love expressed and conversations had about Steven. A few of us talked about some big fundraising ideas on the horizon. And there was also mention of having the entire family sport Steve-O shirts at the annual reunion this year (you ready for us Courtney?)

Steve did not have the best of days. His sweating started pretty early today, around 1. He had group activity, which was painting. MaryAnn told his occupational therapist that Steve doesn't really like painting, unless it's with spray paint. They rigged a brush to a head piece which allowed him to paint. It's important for him to explore activities which he can participate in. While I don't think that painting will be Steve's new gig, he's trying. His willingness to be open to things is hugely commendable and important. He's maintaining an open mind. And being positive. May we all take a lesson from that, huh? Besides, he's so sweet, that even if he really didn't want to do it (which may have been possible today) when his occupational therapist Pat suggested it optimistically, I bet he didn't want to let her down, so he said okay. Gotta love him.

I hope Steve has a better day tomorrow. MaryAnn has been having some intense training on administering Steve's medications. Let's send them both our love, and prayers for perseverance and strength with all of the new and unexpected things that they both are encountering.