1.26.09

The new year seems to have finally kicked in.

For one, Steve's feeling a little better and his mood is a little brighter. That could be thanks to the weekend visitors: Melissa, Amanda, Austin, Boomer, Jim, Courtney, Brandon, Jeremy, Melissa and Sydney; and then he rounded out his Saturday with Kris and Ashley taking the overnight. This weekend Steve also got back to his neck exercises, something that he wasn't able to do between the discomfort and infections in the last number of weeks.

And as most of you have probably heard (or read in the comments), the FDA approved clinical trials for stem cell research, which could have HUGE implications for Steven's future. Yes, yes!

And, (yes, there's more) the Christopher and Dana Reeve Paralysis Act was passed which will work toward the support and enhancement of paralysis research (expands research on paralysis at the National Institutes of Health), rehabilitation (builds on research to enhance daily function for people with paralysis, including a Clinical Trials Network, to measure effectiveness of certain rehabilitation tactics and encouraging shared findings on paralysis to improve rehabilitation, and quality of life programs (works with the Centers for Disease Control and Prevention (CDC) to improve the quality of life and long-term health status of persons with paralysis and other physical disabilities).

So, things are looking a bit brighter, a bit better. And we are so grateful. As always, thanks for checking in. Hope is a powerful thing and I know Steven continues to have a solid family of hope here. Thank you.

1.22.09

Steve's having a tough time. He's been in a lot of pain. From what I've read, it seems that chronic pain called neurogenic or nerve pain, is very common with paralysis. Unfortunately, his pain medication does not seem to be offering much comfort. It's been very difficult.

Uncle Joe and my parents arrived last night for a short visit. Hopefully the company will be a good distraction and bring Steve some laughter. I know that his buddies from Shepherd, Lex and Lorenzo, still call and offer inspirational pep talks.

Please keep the prayers and love flowing. May Steven find comfort and ease soon.

1.12.09

Steve hasn't been feeling well over the last few days. He's got a UTI. He felt so badly yesterday, that he remained in bed. He had a good deal of company on Friday--which always lifts his spirits. Especially when it's his friends. And he enjoys talking to Heather, a friend who is in nursing school, and who comes to help out over the the weekends.