Monday, August 4, 2008

When I asked Steve what he would like for me to tell his fans, he said, "I'm OK."

And indeed he is; Steve looks great. We think he has put on some weight since Shepherd, and his smile definitely seems closer to the surface than it was there.

The amazing house design allows him to come out into MaryAnn's living room. So we watched some home movies that Uncle Joe brought of Patrick and Bryan and his boat, and even some footage of doing a pool repair, something that Steve is very familiar with. Last night we all watched Rambo 4 together: Steve, MaryAnn, April, Kris, Ashley, Uncle Joe, Cheech (Steve's old partner when doing pools), and me. As I cringed and fidgeted from the goriness, Steve smiled wide. It was bizarrely wonderful.

His new living space is beautiful. I personally extend big hugs and thanks to everyone who had a part in bringing Steve's home together in the time you did. It's astonishing. Wow.

Unfortunately, Steve's been waiting on new pieces for his electric wheelchair, so he hasn't been able to be as mobile as he would like. But the repair guy is due to come this afternoon. We are crossing our fingers that he will be good to go after that. Although the manual chair is great, Steve really wants to be moving on his own. Our first excursion out will be to Kris's house (Kris lives very close by) and we hope to be able to do that all together today or tomorrow.

The workload for Steven's care is immense--it cannot be overstated. And it's around the clock. I do not know how these guys have been doing it. They have Tracey during the day now which is great, but they cannot continue to not sleep through the night.

I'm going to get back to Steve. These last few days here have been hectic and head-spinningly busy, but more than anything, it great to see Steve smile and it feels so good to all be together.