Steven seemed tired again today, much less awake than he was two days ago. We hope to ask at the next visit why that might be, since he hasn't had any pain medication (he was offered it, but declined it). He does not seem to be taking as many breaths on his own today. He asked his mom when will he be able to walk. She said that we are going to need to see what they say when we get over to Atlanta. The goal right now is to keep everything positive. MaryAnn and Joe want to wait till they get to Atlanta before they discuss the severity of his condition with him. They will have the proper emotional support staff in place there.
Bobby Cooper (from Steven's work) went in to see him and told him that he can't wait for Steve to get over to Atlanta so he can run him around the block in his wheelchair. Steve said "Me too."
Since Steve's been asking the same questions each day, we wonder if there is any short-term memory loss. Of course, with such limited communication, it's hard to know for sure.
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