Sunday, March 22, 2009

March 22, 2009

We are so lucky to have Steven with us. One year ago today, at 8:07 p.m., I got a phone call from my sister. Steven was in an accident. It's been a year that cannot be put into words.

But it's also been a year where I've seen Steve laugh, smile and show his deep appreciation for the enduring friendships of those who've stood by him. And to be beside him as he makes jokes or perhaps even makes fun of you, you see the measure of his indomitable spirit. He's given us a profound lesson of courage and hope. And although a year has passed, I am compelled to point out that this is still the beginning. We were told early on, that it could take as long as 18 months for the swelling to go down, due to severity of the trauma to the body. It's still early.

This past week was a reminder of the instability of Steven's condition. Twice he was taken to the hospital. The issues were related to his stomach. He had to have his feeding tube changed and he's still feeling discomfort. We don't know yet if he will need to have the tube changed again, which could require a medical procedure.

Perhaps you, like me, find yourself struggling sometimes to find a way to bring optimism to Steve. Words feel empty; how can you speak to his experience having no idea what it might be like to not eat, speak, move or really see for a year? But as I write this, I am reminded that the message is not in the words, it's in the act of talking and being there. The act of expressing or even just trying to—even if the words are awkward—is giving. What can we give Steven? Time, friendship, encouragement, and love, always with recognition of the severity of his last year. It's our job to remind him that light is ahead, perhaps not visible yet, but waiting in tomorrow.

In the midst of such an intense week, Steve also had a meeting with his pulmonolgist. The doctor told Steve that in just examining his lungs, he would never know that he was on a trache. His lungs are in great shape. Awesome news.

I know that some of you check this blog everyday. Thank you. Know that every message here has been shared with Steve. MaryAnn and Joe asked for me to thank you today for your ongoing prayers, love, and support.

xo Aunt Jean