Tuesday, December 30, 2008

12.30.08

We were so grateful to be together as a family over Christmas. There were 16 of us sleeping under one roof. Yes, it was as crazy as that sounds. Unfortunately, since Steve had to get IV medication, none of us were able to help MaryAnn and Joe with the overnights. That was really frustrating since there is so little we can do to help, but administering the IV meds was such a medically complex process, and they were the only ones who could do it. But as of Sunday afternoon, Steve had his last of the IV antibiotics. Yesterday, a nurse came over to remove the line.

Steve has been feeling good. He had a fevers during the week, but as of yesterday, he had about three days of no high temperatures and was feeling better. We had a couple of scary moment with clots like the one I described at the beginning of the month, but in each case, someone responded immediately and got air to Steven quickly. The morning are still a tough time since he continues to have severe leg pain then. Sometimes he's able to sleep a bit which is helpful, and then he gets up in the chair later in the afternoon.

Thanks to all of your thoughts and notes; I was able to share them with Steve on Christmas night.

I believe that the new year is going to bring great progress for Steve. It's a new start and I believe it contains that one good thing we've been waiting for, whatever it might be, and many others. I believe Steve is going to get stronger and return to his neck, mouth and swallowing exercises. I believe we are all ready to say goodbye to 2008. And I believe in every possibility for Steve in 2009. Positively.